publications

As the project grows, we will be publishing our research findings in various outlets to ensure that patients, families, and clinicians have access to this data.

Marie L. Neumann, Jessica Y. Allen, Swapna Kakani, AmyLadner, Meghan Hall Rauen, Meaghann S. Weaver, and David F. Mercer. A beautiful struggle: parent-perceived impact of short bowel syndrome on child and family wellbeing. Journal of Pediatric Surgery. (2021)
Article available online for free here:  FULL TEXT |
PDF 

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Poster presentations at ASPEN annual conference, March 2022

poster 1: Transitioning in and transitioning out: parent and adult patient experiences with healthcare for intestinal failure by Marie L. Neumann, Swapna Kakani, Jessica Y. Allen, Amy Ladner, Meghan Hall Rauen, Meaghann S. Weaver, and David F. Mercer

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poster 2: Beyond clinical outcomes: using a disease-specific pilot survey to explore parent perceptions of wellbeing for children with short bowel syndrome by Marie L.Neumann, Jessica Y. Allen, Swapna Kakani, AmyLadner, Meghan Hall Rauen, Meaghann S. Weaver, and David F. Mercer