publications

As the project grows, we will be publishing our research findings in various outlets to ensure that patients, families, and clinicians have access to this data.

Poster presentations at Pediatric Intestinal Failure and Rehabilitation Symposium, September-October 2022

Caring for the Caregiver: by Marie L. Neumann, Swapna Kakani, Jessica Y. Allen, Amy Ladner, Meghan Hall Rauen, Meaghann S. Weaver, and David F. Mercer

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Marie L. Neumann, Jessica Y. Allen, Swapna Kakani, AmyLadner, Meghan Hall Rauen, Meaghann S. Weaver, and David F. Mercer. A beautiful struggle: parent-perceived impact of short bowel syndrome on child and family wellbeing. Journal of Pediatric Surgery. (2022)
Article available online for free here:  FULL TEXT |
PDF 

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Poster presentations at ASPEN annual conference, March 2022

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poster 1: Transitioning in and transitioning out: parent and adult patient experiences with healthcare for intestinal failure by Marie L. Neumann, Swapna Kakani, Jessica Y. Allen, Amy Ladner, Meghan Hall Rauen, Meaghann S. Weaver, and David F. Mercer

poster 2: Beyond clinical outcomes: using a disease-specific pilot survey to explore parent perceptions of wellbeing for children with short bowel syndrome by Marie L.Neumann, Jessica Y. Allen, Swapna Kakani, AmyLadner, Meghan Hall Rauen, Meaghann S. Weaver, and David F. Mercer