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Who we are

We are a group of professionals who have all been touched by SBS in one way or another. Our professional backgrounds are in social science, public health, psychology, and mental health counseling.


We grew frustrated with existing research on quality of life for children with SBS and their families, which has largely focused on limitations and symptoms, and not paid enough attention to the multidimensional experiences of those living SBS life.


We want to change that.

 “The measure of who we are is what we do with what we have.”
– Vince Lombardi 

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